I’m not always sure…

Like it states in the title “i’m not always sure…” about a lot when it comes to my disabled son Grayson, but i take each day as it comes.

I think I find it the hardest when he is ill. They say that as his parent no one knows him better than you which i think 95% of the time is true.

It is difficult caring for him and with him not being able to tell you in anyway how he is feeling or what he wants other than in the way he has learnt to can be gut wrenching at times.

So when he is ill his disability’s seem so much worse, other than cleaning his nose and dosing him up on everything you can  i just have to sit there and suffer so to speak.

Watching him struggling to breathe and swallow through his mouth because his nose is so blocked, barely eating at the best of times as it is so when ill next to nothing on the food front.

But even after all this suffering he goes through on a fairly regular basis, he still manages to make me smile even when inside his own head he’s probably screaming “daddy help me”

And all I can do is carry on what I am doing I guess.

I love you son xxx


Posted on 02/04/2012, in Uncategorized and tagged , , , , , . Bookmark the permalink. 19 Comments.

  1. Beautiful post. I know it’s from the heart. These days will always be the worst but you are the most amazing father I know. Not all Dad’s could do what you do full time. I love you.

  2. Absolutely amazing post. You seem to be a fantastic dad and both of your children are very lucky to have you in their lives.

    Their mum is amazing too! x

  3. crystaljigsaw

    This is really touching. I have an autistic daughter and can empathise with how you feel.

    CJ x

    p.s. This post is on my Blog Posts of the Week page on my blog.

  4. Such a lovely post, and so heart felt as well. You can tell just from reading what a great father you are xx

  5. Can relate to you alot. Its so hard when they can’t tell you what they want or need & made so much harder when they are poorly. You sound like you are doing a great job with your son 🙂

  6. love this post, it is hard at the best of times but most of all when they are so ill, The love for you son just comes through your words and making you smile is his way of telling you he loves you too xx

  7. Ash,
    Welcome to blogging.
    I cannot even begin to imagine how hard it is to see Grayson in such pain.
    I guess you just do the best you can, it’s all any of us can do as parents really.
    Much love to you.

  8. Mummypinkwellies

    Brilliant post. Sounds like you’re doing an amazing job x

  9. So nice to hear things from a dad’s point of view for a change. I’m sure you do a great job x

  10. nickietypecast

    Beautiful post – welcome to the world of parent blogging.

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